

The ER is useless for us chronically ill folks.
WHY CANT ER EVER DO SHIT?! Hard few days. Fell and went kaboom UP the stairs and although I passed out and fell upwards, I still ended up...


treading water
It hard when they don’t know how to fix you. I guess I wish it were simple and that life was just easy peasy, but its not. It’s hard...


I think they call it HOPE.
Some days I can barely sit up. I wish I knew what a normal body felt like so I could explain to others what it feels like…to me it feels...


I LOVE you.
Every day I am blessed to have a man who is not only my best friend but also my caregiver. What does that mean? It means that he is...
help spread love.
I am just one woman. I am just one feeble woman who is determined to make a difference in this world. I am a weak, disabled, and sickly...
Dedication to Sabrina (for funeral)
After a decade of friendship and mentoring I believe that Second Timothy explains the way in which I will forever think of mi hija,...


...but I wish I was normal.
How do you handle complete total realization that you’re not a real adult? I wanted so badly to go to the funeral this weekend in...


Mi Hija, te amo.
Saturday I was at low point. I couldn’t see the value in me continuing on in life and I was sick and tired of the fight of being so damn...


the struggle was real.
Saturday night and yesterday were the toughest days of my life. I couldn’t be positive about my situation and everything just felt so...


Untitled
Pain is something I deal with regularly but since the reaction to the medication, my pain is at a steady whole new level of hellish. My...



















