January 23, 2017

I tried to walk yesterday.  My legs are like jello but are painfully stiff.  I made it about a quarter of a block before I got completely messed up. I made it home, with josh having to run and get the car…but I made it.

Every time I complain about my medical situation I need to just shut up…because EVERYTIME I complain, I get worse.  Hard to imagine that possibility huh?  YEP.  My PICC line got a blood clot.  Ive been told my entire life that I bruise and bleed easity and that my blood doesn’t properly clot…

Ive had SO many incidents where I just cant stop bleeding, and then, bam my body decides it wants to get a blood clot.  CRAZY to me.  I sat in the hospital almost laughing, sa...

January 10, 2017

It’s been a rough one.  Its crazy to me how one minor alter in my daily regimen can throw EVERYTHING off.  I tried to wean off the Benadryl pump, VERY VERY SLOWLY…I began noticing symptoms when we reached 1mg/hr. less that I had been receiving.  After I was down about 1.5mg, I had to go back to full dose and reinstall the bolus pump for flares.

I am on SUTENT a chemotherapy drug that has a few side effects.  I am trying my best to manage through them.  I had a high fever for a few days and my PICC line in my arm was incredibly sore and burning.  I went to ER to make sure I didn’t have some sort of infection.  3 days of hospitalization later, I have a new PICC and am more miserable now than...

January 4, 2017

It’s a new year so let me introduce myself…I am Elle.  Ok, 99% of you know me, but do you really know me?

I am 6’ tall but I am very rarely seen standing.  I had the same shape as Jennifer Lopez for years…and then, prednisone happened.  Now, I am more like Amber Rose.

As a person who is chronically ill I am supposed to hate my situation, but I don’t.  The truth is that being this sick for this long has made me a better person.  I think only a few people can explain this transition.  I can say without hesitation that I used to be a bitch.  I acted as if the world revolved around me.  Even when I was teaching it was my pride of success that kept me going…it took me over a year in classroom to figu...

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