January 29, 2015

First off I want to apologize for the fact that I haven't been able to blog a lot lately. I have been incredibly ill. I had c. diff again for the third time in a year and the doctor put me on anabiotic-which did not work the first time then lowered the dose that worsened it, and then doubled the dose- and now I'm finally better. I still have horrible pain. He did a sigmoidoscopy and everything looks okay so that's good but I still have the pain and I go back to the doctor next week. I did eat some real food today though so we'll see how that goes. 

 

Tuesday was my big event. It was the American Heart Association luncheon. They showed a eight minute video about my life and then I gave a five-minu...

January 22, 2015

Well.  I was denied for my fecal transplant study.  This means I am completely left alone stranded on a desert island with horrid poo and pain. LOL.  No in all seriousness though I am at my wits end. I don’t know what to do anymore.  I have shit the actual house so many times I can’t even count. We go through more bleach over here than anyone can imagine…  CLASSY POST?  Nope, realism.  I am showing you the realistic life of someone who is chronically ill.  I am not living a glamorous life.  I am a mess. 

 

I just want to be sick.  Josh’s mom put it perfectly the other day she said “I wish we could get back to when you just were passing out…and that was...

January 21, 2015

January 21, 2015

Being chronically ill is the hardest thing I think anybody can go through. I wake up every day praying for a miracle and praying that when I step out of bed I'll be cured, but it's not a reality. Usually I can hold my head high and find all the positives in my life and combat any sort of sadness that I'm feeling. Lately, it's impossible. In the wintertime my system can't deal with life. I pass out more and this winter with the C. Diff and colitis- I am a mess. I feel like Josh deserve so much more than I offer him. He deserves a woman vibrant, fun and healthy... someone who can go out with him and keep up with him and instead he stuck with this piece of crap who lays in bed. it's not that I want to...

January 12, 2015

I apologize for not blogging recently.  I had injured my left wrist which made it impossible to tyoe.  Oddly, it has nearly completely resolved itself of pain.  The dr thinks it was a ganglion cyst which then the ER dr today said probably re absorbed its fluid  into the surrounding tissue…

 

I got my bed last week and I LOVE IT.  It is wonderful.  There isn’t anything I can complain about.  It is amazing.  I have had 3 great nights of sleep usingit which is saying a lot because I have been incredibly Ill.  I have C. Diff again.  Badly.  Today I was in ER due to dehydration dn pain.  Good news is that it doesn’t look like it is any sort of ischemic colitis so that is a plus.  I was...

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